We aren’t leaving for Boston tomorrow.
Less than 48 hours after the Mad Hatter Benefit, I noticed a lump in Poppy’s neck. I took her in to have it examined and her pediatrician sent us to Randall’s for some imaging – from there she was referred to pediatric surgery- and now we are making arrangements with her ENT for further scans including possible CT and MRI. The doctors do not know what the mass is – but can clearly see it on ultrasound. They suspected a thyroglossal duct cyst but say it is not in the typical location. Pediatric surgery said that it seems “fishy” and it needs to come out.
On top of the new medical issue, Poppy’s respiratory illness has not resolved enough for her to be safely put under anesthesia.
And lastly, OHP has denied the third appeal and is refusing to pay any portion of the surgery. It was originally quoted to me that this two-part surgery would cost $60k – it was a gross understatement as I have found out that that figure was only for one part of the two-part surgery – making the surgery well over $100k. Boston is working miracles for us and trying everything in their power to get the remainder of the fees covered and I am so blessed to have them working so hard to get Poppy what she deserves. They have even paid the cancellation fees for our flights. BCH has saved August 15 as a secondary surgery date in hopes that Poppy will be healed and well enough to travel then.
It just wasn’t the right time. Please keep Poppy in your prayers and thoughts as we navigate this setback. As her mama, I am absolutely broken hearted and scared – but seeing how my community has come together for her places a gentle peace within.
Please forgive me for taking so much time to make this statement. I have been focusing on holding, kissing, and embracing every moment with my children – it is the only thing that gets me through all of the tough stuff.